Welcome to the Internet Home of the Lyme Disease Society
The Lyme Disease
Society is a Pennsylvania-based volunteer group dedicated to advocacy on Lyme disease
tick-borne diseases) education, prevention, research and patient issues.
In Memoriam, Mary M. Halinski
(1961-2013), Noted Patient Advocacy Leader,
Lyme Disease Society Co-Founder and Executive Director
Excerpts from 'Words of Remembrance' for his Mom written
and delivered by her son Luke at her funeral -
"My Mom's life was a most beautiful
Mosaic composed of many pieces: the people who my Mom impacted. Her life was an
extraordinary masterwork of love, with each unique piece, each person,
glistening in the special way Mom knew them, helped them, cared for them and
loved them. My Mom radiated a vibrant generosity of spirit and love that will
carry on always."
"Most of all, I know that now everyone
here has a new advocate for them in heaven."
Mary M. Halinski, 52, of Lansdale, PA, passed away Friday,
August 16, 2013, after extended health challenges from pancreatic
cancer. She was the beloved wife of Robert Halinski, her husband of 32 years,
and an amazing mother, sister, aunt and friend.
CDC Report on Vector-Borne Diseases
The CDC issued a new report on the concerning increase in cases of Vector-borne diseases in recent years, including Lyme and tick-borne diseases.
There are links to the report and also info from the CDC on their expanded case estimates of Lyme disease below.
CDC Vector-Borne Disease Report (outside site)
CDC Estimates on Lyme Disease Cases (outside site)
Cures Act Update: Latest Information on Federal HHS Working Group
Updated information, including meetings and announcements, from the federal HHS Tick-borne Diseases Working Group
established by the 21st Century Cures Act is available at the below HHS website. It is exciting to see the Working
HHS Federal Tick-Borne Disease Working Group (outside site)
Archive From Dec 2016: Victory! Congress Passes Federal 'Cures' Bill Including Tick-Borne Disease Legislation!
The US House and Senate have passed HR 34, the 21st Century Cures Act, including positive Lyme and tick-borne disease language! The bill will now head to President Obama, who has announced support, for his signature. The Cures bill includes language similar and taken from excellent federal Lyme and tick-borne legislation, sponsored by Rep. Chris Gibson, which had Lyme Society input. The language would establish a tick-borne disease working group with public members, including patients, non-profit organizations and clinicians.
Thanks very much to all who helped make this tremendous victory for patients happen! On the House side, Congrats and special thanks to Rep. Chris Gibson and his office for sponsoring the Lyme and tick-borne disease bill, and Chairman Upton and the bipartisan leadership on Energy and Commerce Committee. On the Senate side, Congrats and thanks to Senator Alexander, Chair, and the bipartisan leadership, of the HELP Committee, and special thanks to Senator Casey from Pennsylvania and his office for all of their support for patients and the fight against Lyme. Thanks to all members of the House and Senate who were involved and supportive of the Lyme and Cures legislation! Lyme Disease Society was involved and supported this legislative effort to fight Lyme and tick-borne diseases and help patients from the earlier stages through today's passage. Thanks to all of the groups and individuals in the Lyme disease community who supported this bill and worked on the effort.
Link to a pdf copy of HR 34, 21st Century Cures Act. Tick-borne disease section is Sec 2062. (outside site)
Lyme Disease Society Supports SB 100 and HB 174 in PA Legislature to Help Patients
Lyme Disease Society strongly supports HB 174, sponsored by PA Rep Baker, which recently passed the Pennsylvanua House, and SB 100, sponsored by PA Sen Greenleaf, in the Pennsylvania State Senate. SB 100 and HB 174 would help Lyme and tick-borne disease patients by ensuring that they can receive appropriate medical care and insurance coverage for their treatment.
If you live in Pennsylvania, contact your State Senator and ask them to support SB 100 (in the Senate) and HB 174, which recently passed the House. You can use the below link to find and contact your State Senator.
Pennsylvania Legislature website (outside site)
Link to a copy of SB 100 and bill information (outside site)
Link to a copy of HB 174 and bill information (outside site)
CDC - Lyme Disease Transmission
Link to information from the CDC on Lyme Disease
Transmission (outside site)
Disease Case Statistics
Link to the CDC Statistics on Lyme disease
Study - Lack of Evidence Behind Treatment
Link to Study Published in Archives of Internal Medicine
on Level of Evidence Behind
Infectious Disease Treatment Guidelines (outside site)
Link to Reuters article on Infectious Disease Treatment
Guidelines Study (outside site)
Link to the CDC's tick removal guide
Note: The above links are to external sites. The
and content at the linked addresses is outside the control of this site and
the Lyme Disease Society.
If you are interested in joining the Lyme Disease Society email list or being involved with our volunteer advocacy work, email LymeSociety@aol.com.
The Central Bucks Lyme
Disease Support Group meets monthly in Doylestown, PA outside of Philadelphia.
Click for more details
you for visiting LymeSociety.com, and we
hope you will come back soon. Let's all work together to
fight this disease!