Welcome to the Internet Home of the Lyme Disease Society at LymeSociety.com!

May is Lyme Disease Awareness Month!

The Lyme Disease Society is a volunteer group dedicated to advocacy on Lyme disease
(and other tick-borne diseases) education, prevention, research and patient issues.

In Memoriam, Mary M. Halinski (1961-2013), Noted Patient Advocacy Leader,
Lyme Disease Society Co-Founder and Executive Director

Excerpts from 'Words of Remembrance' for his Mom written and delivered by her son Luke at her funeral -

"My Mom's life was a most beautiful Mosaic composed of many pieces: the people who my Mom impacted.  Her life was an extraordinary masterwork of love, with each unique piece, each person, glistening in the special way Mom knew them, helped them, cared for them and loved them.  My Mom radiated a vibrant generosity of spirit and love that will carry on always."

"Most of all, I know that now everyone here has a new advocate for them in heaven."

 

Mary M. Halinski, 52, of Lansdale, PA, passed away Friday, August 16, 2013, after extended health challenges from pancreatic cancer. She was the beloved wife of Robert Halinski, her husband of 32 years, and an amazing mother, sister, aunt and friend.




Lyme Disease Society Supports SB 100 and HB 174 in PA Legislature to Help Patients

Lyme Disease Society strongly supports SB 100, sponsored by PA Sen Greenleaf, in the Pennsylvania State Senate and HB 174, sponsored by PA Rep Baker, in the Pennsylvanua House. SB 100 and HB 174 would help Lyme and tick-borne disease patients by ensuring that they can receive appropriate medical care and insurance coverage for their treatment.

If you live in Pennsylvania, contact your State Senator and State Representative and ask them to support SB 100 (in the Senate) and HB 174 (in the House). You can use the below link to find and contact your State Senator and State Rep.

Pennsylvania Legislature website (outside site)
www.legis.state.pa.gov

Link to a copy of SB 100 and bill information (outside site)
http://www.legis.state.pa.us/cfdocs/billInfo/billInfo.cfm?sYear=2017&sInd=0&body=S&type=B&bn=0100

Link to a copy of HB 174 and bill information (outside site)
http://www.legis.state.pa.us/cfdocs/billInfo/billInfo.cfm?sYear=2017&sInd=0&body=H&type=B&bn=0174


Victory! Congress Passes Federal 'Cures' Bill Including Tick-Borne Disease Legislation!

The US House and Senate have passed HR 34, the 21st Century Cures Act, including positive Lyme and tick-borne disease language! The bill will now head to President Obama, who has announced support, for his signature. The Cures bill includes language similar and taken from excellent federal Lyme and tick-borne legislation, sponsored by Rep. Chris Gibson, which had Lyme Society input. The language would establish a tick-borne disease working group with public members, including patients, non-profit organizations and clinicians.

Thanks very much to all who helped make this tremendous victory for patients happen! On the House side, Congrats and special thanks to Rep. Chris Gibson and his office for sponsoring the Lyme and tick-borne disease bill, and Chairman Upton and the bipartisan leadership on Energy and Commerce Committee. On the Senate side, Congrats and thanks to Senator Alexander, Chair, and the bipartisan leadership, of the HELP Committee, and special thanks to Senator Casey from Pennsylvania and his office for all of their support for patients and the fight against Lyme. Thanks to all members of the House and Senate who were involved and supportive of the Lyme and Cures legislation! Lyme Disease Society was involved and supported this legislative effort to fight Lyme and tick-borne diseases and help patients from the earlier stages through today's passage. Thanks to all of the groups and individuals in the Lyme disease community who supported this bill and worked on the effort.

Link to a pdf copy of HR 34, 21st Century Cures Act. Tick-borne disease section is Sec 2062. (outside site)



Link to the latest Lyme disease news and media reports using the below RSS feed

RSS Feed Widget
Note on above Google News
RSS Feed:  The news stories are from an RSS feed provided by Google News using the search term 'lyme disease'. 
The stories and links displayed are not edited, selected or endorsed by this site and the Lyme Disease Society.  All stories are automatically
displayed from the Google News RSS feed and not from the editorial control or selection of this site.  All links are to outside sites over which
this site and the Lyme Disease Society have no control.  The information and content contained in the linked pages may be inaccurate
and is not endorsed by this site and the Lyme Disease Society.  The Google News RSS feed is provided for non-commercial purposes.

CDC - Lyme Disease Transmission

Link to information from the CDC on Lyme Disease Transmission (outside site)

www.cdc.gov/lyme/transmission/index.html

Lyme Disease Case Estimate Dramatically Increased by CDC  

Many experts, clinicians and patients advocates knowledgeable about Lyme disease
had long contended CDC needed to improve its surveillance.  Lyme Disease Society
federal advocacy efforts had urged improved Lyme disease surveillance by CDC for many years. 
The new CDC estimate is higher than previous surveillance by a large magnitude:
approximately 300,000 cases per year.

Link to CDC press release on new Lyme disease case estimate (outside site)

www.cdc.gov/media/releases/2013/p0819-lyme-disease.html

Study - Lack of Evidence Behind Treatment Guidelines

Link to Study Published in Archives of Internal Medicine on Level of Evidence Behind
Infectious Disease Treatment Guidelines (outside site)

archinte.ama-assn.org/cgi/content/short/171/1/18

Link to Reuters article on Infectious Disease Treatment Guidelines Study (outside site)

www.reuters.com/article/idUSTRE70A06J20110111

Lyme Disease Case Statistics

Link to CDC press release on new Lyme disease case estimate (outside site)

www.cdc.gov/media/releases/2013/p0819-lyme-disease.html

Link to the CDC Statistics on Lyme disease cases under previous surveillance (outside site)

www.cdc.gov/lyme/stats/index.html

Tick Removal

Link to the CDC's tick removal guide (outside site)

www.cdc.gov/lyme/removal/index.html

Note:  The above  links are to external sites.  The information
and content at the linked addresses is outside the control of this site and the Lyme Disease Society.


The Central Bucks Lyme Disease Support Group meets monthly in Doylestown, PA outside of Philadelphia.

Click for more details




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